Data Ethics Lead

Summary

Provides expert advice to integrate ethics into data projects and programmes. Oversees governance and assurance activities. Reviews and approves impact assessments and audits. Promotes awareness of ethical principles and their application across the organisation. Contributes to the development of policy, standards and guidelines related to data ethics.

Work Activity Components

Title Details
Impact assessment (Level 5) (AIDE) Reviews and approves impact assessments and audits carried out by others.
Governance (Level 5) (AIDE) Oversees governance and assurance activities.

Technical Skills

Title Details Depth
Big Data The discipline associated with data sets so large and/or complex that traditional data processing applications are inadequate. The data files may include structured, unstructured and/or semi-structured data, such as unstructured text, audio, video, etc. Challenges include analysis, capture, curation, search, sharing, storage, transfer, manipulation, analysis, visualization and information privacy. Proficient in
Business Environment The business environment relating to own sphere of work (own organisation and/or closely associated organisations, such as customers, suppliers, partners and competitors), in particular those aspects of the business that the specialism is to support (i.e. localised organisational awareness from a technical perspective). Proficient in
IT Environment The IT environment relating to own sphere of work (own organisation and/or closely associated organisations, such as customers, suppliers, partners), in particular own organisation's technical platforms and those that interface to them through the specialism, including those in closely-related organisations. Proficient in
Machine Learning Tools and Techniques Knowledge and understanding of the development of intelligent agents, able to mimic cognitive functions, react to stimuli, and improve automatically through experience and the use of data. Proficient in

Other Skills

Title Details Depth
Artificial Intelligence Concepts Understanding of concepts and trends in artificial intelligence and the potential benefits and real-world implications, including risk and security, of its deployment within the organisation. Proficient in
Threat Landscape Knowledge and understanding of the threat landscape, regulatory and legislative requirements and awareness of industry good practice relating to information governance, privacy and security. Familiar with

Training

Title Details
Coaching Concepts, methods and techniques for providing coaching in subject specialisms to individuals or groups (e.g. GROW model).
Security Awareness Tools and techniques to help users and employees understand the role they play in helping to combat information security breaches and for IT and security professionals to prevent and mitigate risk.

Professional Development Activity (PDA)

Title Details PDA Group
Deputising Standing in for supervisor or manager on a temporary basis during periods of absence. Broadening Activities
Gaining Knowledge of Activities of Employing Organisation Developing an understanding of the potentially diverse range of activities (service, governance, administrative, regulatory, commercial, charitable, industrial, etc.) undertaken by the employing organisation. Increasing Knowledge
Gaining Knowledge of Broader IT Issues Increasing and maintaining currency of knowledge of broader IT issues through reading, attending and participating in seminars or conferences, special studies, temporary assignments etc. Increasing Knowledge
Job Shadowing and Special Assignments Undertaking temporary periods or secondments in other roles, particularly those that offer a new perspective on own function or exposure to other environments and cultures. Broadening Activities
Negotiating and Influencing Undertaking learning and practice of negotiating with and influencing others. Developing Professional Skills
Participation in Professional Body Affairs Taking an active part in professional body affairs at branch, specialist group, committee or board level. Participation in Professional Activities
Research Assignments Exploring a topic which is not part of own normal responsibilities and presenting findings to colleagues and/or management Increasing Knowledge
Team Leadership Undertaking learning and practice of the skills required to lead teams, including motivation, direction, coaching, delegation, appraisal, counselling and developing others. Developing Professional Skills

Qualification Components

Title Awarding Bodies
BCS Foundation Certificate in the Ethical Build of AI BCS The Chartered Institute for IT
FEDIP Advanced Practitioner The Federation for Informatics Professionals

Additional Frameworks

National Competency Framework for Data Professionals in Health and Care

Behaviours

Title Details
Delivering outcomes (B1.1) (Level Four) You are able to gather the skills of a diverse multi-disciplinary team in order to achieve an agreed outcome.
Communicating within a hierarchy (B1.2) (Level Four) You are able to challenge the use of hierarchical arguments where logic supports a different course of action and call out the use of emotional or coercive influence.
Generating consensus (B1.3) (Level Four) You are consistently able to gather a consensus of opinion to support your arguments and often know what people will support prior to discussion.
Logical arguments (B1.4) (Level Four) You are able to construct a clearly predicated argument with logically consistent conclusions whilst providing robust refutations of counterarguments.
Negotiation (B1.5) (Level Four) You are able to negotiate exchanges over multiple poles of interest in order to achieve a specific result even when those involved have hidden agendas, while allowing everyone to share multiple viewpoints.
Generating support (B1.6) (Level Four) Your team and colleagues will often go above and beyond to support your initiatives.
Influence (B1.7) (Level Four) Your opinion is often sought early by peers dealing with politically sensitive issues.
Equality (B2.1) (Level Four) You make extra efforts to ensure that, where the voices of certain groups are not being heard, you take the time to give them a voice.
Challenging discrimination (B2.2) (Level Four) You are able to engage with sensitive ED&I issues and deal with them with the utmost dignity, respect and fairness.  
NHS Constitution (B2.3) (Level Four) You promote the behaviours and values listed in the NHS Constitution.
Supporting others (B2.4) (Level Four) You view the wellbeing of you and those around you with high priority.  You take every step to ensure that people within your domain know that it's okay not to be okay.
Open environment (B2.5) (Level Four) You are an ally for underrepresented and marginalised groups and model an open environment by facilitating sessions for these individuals to share their lived experiences with you and your colleagues.
Challenging disrespect (B2.6) (Level Four) You support staff to understand the impact of disrespectful behaviour and support them in challenging it.
Written communication (B3.1) (Level Four) You are able to produce original written material that is accessible, referenced and publishable, including the production of literature reviews.
Discussing complex ideas (B3.2) (Level Four) You are able to engage in complex technical debates with other specialists whilst using accessible and accurate language.
Delivering complex ideas (B3.3) (Level Four) Your confidence in your expertise enables others to feel confident and at ease with your contribution.
Understanding new ideas (B3.4) (Level Four) You are able to design all insight into complex information in a way that is both accurate and concise.
Reading audiences (B3.5) (Level Four) You are able to read large audiences to assess how well they have understood a series of multi-disciplinary concepts.
Problem sharing (B4.1) (Level Four) You look to provide multi-disciplinary solutions for maximum adoption throughout the organisation, while respecting pre-agreed boundaries.
Seeking opinions (B4.2) (Level Four) You regularly create multi-disciplinary teams to address complex problems.
Sharing best practice (B4.3) (Level Four) You create an environment where the sharing of best practice is viewed as a central part of every review process.
Embedding best practice (B4.4) (Level Four) You ensure that all processes within your area are based on models of "what good looks like".
Patient impact (B5.1) (Level Four) You ensure work within your area is as efficient as possible and enables better health and care outcomes.
Understanding the customer (B5.2) (Level Four) You seek out opportunities to work collaboratively with customers to pre-empt requests.
Customer service (B5.3) (Level Four) You understand changes within health and care with a view offering solutions to foreseen requirements.
Customer solutions (B5.4) (Level Four) You apply new solutions to customer requirements in order to ensure maximum accuracy and efficiency.

Leadership

Title Details
Empathy and understanding (Level Four) You act with care, empathy and understanding and ensure that your team knows you are always available to them.
Pressure (Level Four) You are aware of the pressures faced by your senior managers, as well as those in your team, and are able to work collaboratively to ease them.
EDI (Level Four) You actively engage in your organisation's EDI networks to better understand and appreciate the lived experiences of people different to you and how you can create a working environment supportive to all.
Compassion (Level Four) You ensure that, whilst being a workplace, emotional issues are dealt with care and sensitivity.
Team support (Level Four) Your team feels supported and empowered to exceed their goals.
Positivity (Level Four) You set clear goals and expectations that are visible to your team and others in affiliated areas.
Innovation (Level Four) You build the importance of trying new things and failing in a controlled environment into your ways of working whilst always celebrating success.
Safe to fail (Level Four) You facilitate networking opportunities for your team, including those with external organisations.
Fairness (Level Four) You are regarded as fair by your team who consistently give you the best of their abilities.
Opportunities (Level Four) You identify opportunities for your team to learn from failure including fast fails and sandbox environments.
Goals (Level Four) You set challenging goals whilst empowering the team to explore a number of different solutions whilst keeping yourself available to support them.
Performance (Level Four) You regard sub standard work as a reflection of your ability as you had the opportunity to prevent it.
Motivation (Level Four) You use your knowledge of the motivations of your team to plan succession and support them in their ambitions beyond your team.
Expectations (Level Four) You are able to express the ramifications of below standard work in an honest and unemotional way.
Developing talent (Level Four) You take pride in the talent of your team and go to great lengths to develop their skills and innovations.
Succession planning (Level Three) You are able to readily identify those in your team who have the opportunity to excel at their level and beyond and use this knowledge to begin succession planning.
Managing expenditure (Level Four) You are able to agree and control expenditure required for the effective running of your team.
Budget control (Level Four) You agree and control budget allocations, highlighting anomalies in expenditure and make suggestions for the reallocations of funding.
Forecasting (Level Four) You are able to produce accurate forecasts based on current expenditure and foreseen developments within your division.
Business cases (Level Four) You deliver accurate and insightful business cases with appropriate and balanced options appraisals.
Recruitment (Level Four) You support your team to recruit effectively whilst ensuring that fairness towards equality and diversity remains a priority throughout the process.
Supporting ambition (Level Four) You take the time to talk to all staff members within your remit and encourage your managers to support their ambitions, providing solutions where these diverge from perceived organisational drivers.
Training opportunities (Level Four) You ensure that your managers enable training on a regular basis within their unit and have ample access to training for their own development. You ensure that everyone understands delegation is a development opportunity that requires time and should not be seen as a shortcut to alleviating workloads.
Professional development (Level Four) You take an active interest in all staff members' PDPs within your area and ensure that development opportunities are seized upon.
Managing external pressures (Level Four) You ensure that time is set aside for the team to focus on each aspect of their role, wherever possible, free from distraction and interruption, protecting them, where possible, from the pressures of other managers outside the department, ensuring their well-being is protected from external pressures.

Data Skills

Title Details
Non-technical audiences (Level Four) You can listen to the needs of clinical and business stakeholders, and interpret them.
Stakeholder management (Data Ethics) (Level Four) You can effectively manage stakeholder expectations.
Positive communication (Data Ethics) (Level Four) You can manage active and reactive communication promoting ethics as an essential part of data solutions.
Facilitation (Data Ethics) (Level Four) You can support or facilitate difficult discussions within your team and with diverse senior stakeholders.
Relationship management (Level Four) You can influence stakeholders and manage relationships effectively.
Translation (Level Four) You can translate technical concepts to non-technical audiences so they are understood by all.
Technical knowledge (Level Four) You can apply data ethics principles and policies to appropriately facilitate the development and use of technological and data products and services.
Joint working (Level Four) You can understand technical jargon and concepts and have sufficient knowledge to hold meaningful conversations with data science experts on issues such as minimising bias in data, or gathering, collecting, cleansing, triangulating, and reusing data.
Coaching and mentoring (Level Four) You can effectively support data professionals in implementing ethical policies and practices in their work.
Analysis (Level Four) You can draw together, analyse and evaluate qualitative and quantitative data.
Interpretation (Level Four) You can draw together, analyse and evaluate qualitative and quantitative data.
Research (Level Four) You can turn research data into clear findings that inform data ethics decisions.
Capacity building (Data Ethics) (Level Four) You can effectively involve colleagues in analysis and synthesis to increase consensus and challenge assumptions.
Advice (Data Ethics) You can advise on the choice and application of data ethics principles and practices appropriate to individual data methods, and can critique colleagues’ findings to assure best practice.
Ethical diagnostics (Level Four) You can help teams to define their project outcomes and ethical considerations, and to integrate ethical evaluation and assessment.
Application of theory (Level Four) You can apply various theories including medical ethics and social theory to inform data projects, products and policies, and to evaluate and challenge assumptions made in data science projects whilst offering alternative suggestions.
Academic links (Level Four) You can engage with academics and external researchers and are aware of emerging theories and concepts that will have implications for your practice as a data ethicist in health and care.
Patient and public engagement (Level Four) You are able to communicate data ethics principles and practices to patients and the public to promote awareness of and trust in data processes and practice and engage with patients and the public appropriately in the analytics process.
Best practice (Data Ethics) (Level Four) You are able to follow and seek out best practice in the effective delivery of data ethics.
Knowledge base (Level Four) You can demonstrate a working knowledge of social sciences (such as anthropology, economics, sociology, philosophy, psychology or race theory) as relevant to data and analysis in a health and care context.
Underrepresented groups (Level Four) You can incorporate a wide variety of views from underrepresented groups into product and policy work, using in-depth consulting and outreach strategies.
Diversity plans (Level Four) You have a thorough understanding of wider organisational diversity and inclusion plan.
Data systems (Level Four) You can draw on your multidisciplinary background and personal experience to understand the consequences of data systems on a diverse range of stakeholders.
Social issues (Level Four) You can demonstrate a thorough understanding of social issues, types of bias and discrimination different groups can face, and the different ways this materialises in data science and you can use this knowledge to inform your data ethics work.
Approaches (Level Four) You understand the detail of the ethical considerations of potential data science approaches.
Legislation (Level Four) You have a good working knowledge of the legislation applicable in this area, such as General Data Protection Regulation (GDPR) and the Data Protection Act (DPA) as it relates to decisions within data ethics.
Ethical frameworks (Level Four) You can show an awareness of existing data and AI ethics frameworks in and outside government.
Investigation (Level Four) You can ensure that the right actions are taken to investigate, resolve and anticipate ethical problems and challenges in data science, and analysis, approaches and products.
Prevention (Level Four) You can co-ordinate the team to investigate problems, implement solutions and take preventive measures.
Risk management (Level Four) You are aware of the importance of balancing the risks and benefits of consequential or complex issues in data ethics within your organisation whilst applying different methodologies as appropriate.
Consensus (Level Four) You can build consensus on ethical considerations between services or independent stakeholders within the organisation.
Good design (Level Four) You can influence others to make good project design decisions informed by data ethics best practice.
Tools (Data Ethics) (Level Four) You are able to use and explain all appropriate data ethics tools and translate theoretical principles, such as DPA protocols, into practice.
Ways of working (Level Four) You are able to adapt ways of working to changes in data ethics whilst managing the efficacy of products under your control.
Evaluation (Level Four) You can demonstrate familiarity with feedback gathering, evaluation mechanisms and product promotion within data ethics.
User needs (Data Ethics) (Level Four) You are able to capture user needs and translate these into actionable processes for users.
Geographical Data Mapping (Level Two) You understand different geographies and how they can be displayed using point mapping, density mapping, chloropleth, isoline maps etc. You understand how geographical boundaries relate to eachother.
Population Segmentation and Stratification (Level Two) You are able to use decision trees and cluster analysis in addition to simpler techniques. You communicate about methods and related limitations to stakeholders.
Information Governance (Data) (Level Two) You know the key data protection principles. You understand when data can be accessed and shared and know who to approach for advice/approval. You understand the impact of small numbers on identifiability of data.
Behavioural Science (Level Two) You are able to abstract concepts allowing you to prototype a solution and a methodology and can design, deploy and manage experimental designs.
Social Research (Level Two) You are able to use tools including surveys, interviews, focus group discussions and observations to collect information that you are able to analyse and from which you can draw conclusions.
Economics (Level Two) You can apply the appropriate micro or macro-economic principles to lead the production of forecasts and associated analysis, related to the performance of the aggregated economy. You can design, create, test and refine econometric or statistical models to support decision making.

Project Skills

Title Details
Business cases (Level Four) You instigate business case development and work with project management colleagues to define project requirements, scope and overall time, quality and cost constraints.
Scope (Level Four) You define and engage stakeholders.
Reviews (Level Four) You advise on the coherence of programmes in data and digital to maximise the effectiveness of time and available skills within the business.
Quality assurance - Data and digital (Level Four) You lead quality assurance in data and digital, drawing on external expertise where necessary, learning lessons and sharing those with the wider data and digital community for their project work.
Advice and monitoring (Level Four) You monitor and manage the capacity of data and digital teams to meet current project plans, escalating any issues with skills, timeframes and other resources impacting upon project plans with colleagues in project management.
Scheduling (Level Two) You schedule project work appropriately for yourself and the team, ensuring business needs are met both within the project and in business as usual.
Refinement (Level Two) You refine the plan within your work area to take account of any authorised changes communicating actions, progress and results with project managers.
Resource identification (Level Four) You ensure resources for projects are in place and optimised across any programmes, communicating their business value to non-data and digital colleagues and stakeholders.
Skill acquisition and management (WP3.2)(Level Three) You plan for the recruitment of staff with additional required skill sets, liaising with HR and/or other providers to source skilled staff to fulfil project roles, onboard and manage them and their workloads.
Additional tools and resources (Level Three) You cost and acquire, deploy and contract for the support of additional tools and resources such as hardware, software, training and data sources for the course of the project life cycle.
Resource allocation (Level Two) You plan the allocation of existing resources to project work whilst effectively maintaining business as usual wherever feasible.
Project management (Level Four) You ensure the team's project delivery activities have sufficient resources to co-exist with business as usual.
Pilots and testing (Level Four) You manage the risks and issues affecting data and digital roles in the project or programme.
Implementation (Level Four) You engage with project managers and stakeholders to map out all necessary resources and activities for effective and sustained implementation
Business change (Level Four) You promote how data and digital can champion business change and identify further technological opportunities to bring about business benefits.
Assurance (Level Four) You provide assurance that the business benefits identified for a project can be realised, refining options for delivery and managing change control processes.
Evaluation (WP5.3) (Level Three) You ensure appropriate solutions are evaluated and viable alternatives are considered to deliver the intended business benefits.

The Professional Body Responsible for this job family is AphA. This job role profile was created in collaboration with BCS, using Role Model Plus.

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